Caramon, the Million Pillowcase Kid, and I read this news article today about a DC Metro Area teenager that plays guitar, collecting money for a friend with not one but two cancers. This teenager has reached out on youtube to help generate votes for Arms Wide Open Childhood Cancer Foundation in the Pepsi Refresh Project.
This is something you can do... voting ends on September 30th. But really? It's free. And if Arms Wide Open Childhood Cancer Foundation wins, Pepsi will give them a grant to help fund research into pediatric cancer.
Why is this important? Pediatric Cancer gets such little national funding and the child mentioned? The treatment for her cancer is so toxic it actually gave her a second cancer. I mean, how awful is that?
I know we're generating a growing audience of people across the nation. It's truly amazing that you are sharing this blog with those you are close to. I know that many of you are just wanting to give Caramon moral support. Many of you have no real way of helping us with this Eagle project. This is something you CAN do to make a difference.
There's plenty of good causes vying for the grant from Pepsi. This is just the one that touches our hearts.
Here's the video:
--Lady Ozma and Caramon, the Million Pillowcase Kid
PS: Currently this charity is number 3 in the polls. The top two will receive $250k.
Monday, September 27, 2010
Saturday, September 25, 2010
Caramon's Intro Vlog
Caramon recorded his first vlog entry. Please watch it below. As always, feel free to share this with your contacts!
--Lady Ozma and Caramon, the Million Pillowcase Kid
--Lady Ozma and Caramon, the Million Pillowcase Kid
Thursday, September 23, 2010
A short video
Caramon and I wanted to share this video with you because he is an eight year cancer survivor. That's right, he was not quite 5 when we received the devastating phone call that changed our lives.
Did you know that Childhood cancer gets less then 3% of the funding set aside for cancer research? Oprah has covered everything else, but not childhood cancer. There's a huge drive for her to cover this for her last season.
There is just a lot of good information. I will warn you... you might need a tissue when the slideshow of kids comes along. I'm not a crier but it brought tears to my eyes.
Caramon will be coming to you soon with his very own video about his project. For now, grab a tissue and learn something about what he went through.
We are not gearing the pillowcases gathered towards only cancer patients, but it IS where his heart goes.
--Lady O and Caramon, the Million Pillowcase Kid
Did you know that Childhood cancer gets less then 3% of the funding set aside for cancer research? Oprah has covered everything else, but not childhood cancer. There's a huge drive for her to cover this for her last season.
There is just a lot of good information. I will warn you... you might need a tissue when the slideshow of kids comes along. I'm not a crier but it brought tears to my eyes.
Caramon will be coming to you soon with his very own video about his project. For now, grab a tissue and learn something about what he went through.
We are not gearing the pillowcases gathered towards only cancer patients, but it IS where his heart goes.
--Lady O and Caramon, the Million Pillowcase Kid
Tuesday, September 21, 2010
An Introduction - Who we are
Greetings, Blog Reader,
My name is Lady Ozma and my son is Caramon, The Million Pillowcase Kid. Caramon asked for my aid in preparing and managing this blog. He plans on recording videos as his contribution. We shall see how all of this works out, but his first video is already in the works.
Caramon is currently a thirteen year old Life Scout in his local Boy Scouts of America troop. In order to advance to his next rank, Eagle, Caramon must prepare and act out a large service project. His project involves assembling pillowcases and placing in them some various items such as crayons, colouring books, and the like. After completion of the project, he plans to distribute these items to children in local hospitals.
Why is he doing this? Just a few months before his fifth birthday, Caramon fell ill. What we thought was pneumonia turned out to in fact be a Wilms' Tumor. This cancerous tumor grows on the kidney and is generally found in children under the age of six. In fact, the disease is typically found in children under the age of three and is a very common form of cancer. His diagnosis was Stave IV, and unfortunately deeply affected both of his lungs. He lost his right kidney and the lower lobe of his left lung.
He spent many weeks in the hospital over the next year as he received treatment for his cancer. All of this occurred between August 2001 and September 2002. Lucky for us, he has been in remission since 2002.
While going through all of this, someone turned Caramon's name over to a wonderful charity called Hugs and Hope. Their goal was to brighten critically ill children's lives with "happy mail". Several volunteers took it upon themselves to adopt certain ministries. One such volunteer made pillowcases for each child that came her way.
The pillowcase was to remain the special hospital pillowcase. Upon leaving the hospital, you were to launder and put somewhere safe until the next visit. This allowed the child to have something a little special in the hospital to brighten the sterile environment, hopefully be germ-free even though it came from home, and it could keep "home" and "hospital" separate.
An outside might see nothing special about Caramon's pillowcase, but to him it meant the world. He loved his pillowcase then and has kept it as a treasured keepsake. When asked about it, he referred to the volunteer as an angel, and truly, she was to our family.
This year, Bernina and American Patchwork & Quilting teamed up to issue a Million Pillowcase Challenge. Their goal? For American sewers to make 1,000,000 pillowcases to donate to local charities. You can see why our family has taken a shine to this. Caramon knew immediately he wanted to use this challenge as part of his Eagle Project.
Are you interested in following his adventure? Helping? Giving encouragement? Well, this is the place for you! Over the next several months we plan to use this blog to update you on his progress. Look for more blog entries detailing his progress, what people can offer, and hopefully we will end this saga with details of his receiving the award.
Here's a picture of Caramon with his very special pillowcase. With love and thanks to his angel from nine years ago, this picture is dedicated to you. (FYI due to comments on this picture elsewhere... Caramon is wearing Red Cross flip flops from when his father recently gave blood. They were too small for dad and Caramon loves the Red Cross for donating when he was sick. If you are able, donating to the Red Cross is a wonderful thing.)
So where is Caramon at in his progress? Pretty much at the start. He has all his ducks in a row verbally. He turned in his paperwork for the official approval. With any luck that will return to us in about a week's time and he can begin really working on his project.
Thank you for visiting and reading. Please, share this with your contacts. We would love to hear your comments. Subscribe to our RSS and connect with Google or Networked Blogs. Those of you already in touch with us, Caramon's tender heart has been touched more then I can describe. Thank you!
--Lady O
My name is Lady Ozma and my son is Caramon, The Million Pillowcase Kid. Caramon asked for my aid in preparing and managing this blog. He plans on recording videos as his contribution. We shall see how all of this works out, but his first video is already in the works.
Caramon is currently a thirteen year old Life Scout in his local Boy Scouts of America troop. In order to advance to his next rank, Eagle, Caramon must prepare and act out a large service project. His project involves assembling pillowcases and placing in them some various items such as crayons, colouring books, and the like. After completion of the project, he plans to distribute these items to children in local hospitals.
Why is he doing this? Just a few months before his fifth birthday, Caramon fell ill. What we thought was pneumonia turned out to in fact be a Wilms' Tumor. This cancerous tumor grows on the kidney and is generally found in children under the age of six. In fact, the disease is typically found in children under the age of three and is a very common form of cancer. His diagnosis was Stave IV, and unfortunately deeply affected both of his lungs. He lost his right kidney and the lower lobe of his left lung.
He spent many weeks in the hospital over the next year as he received treatment for his cancer. All of this occurred between August 2001 and September 2002. Lucky for us, he has been in remission since 2002.
While going through all of this, someone turned Caramon's name over to a wonderful charity called Hugs and Hope. Their goal was to brighten critically ill children's lives with "happy mail". Several volunteers took it upon themselves to adopt certain ministries. One such volunteer made pillowcases for each child that came her way.
The pillowcase was to remain the special hospital pillowcase. Upon leaving the hospital, you were to launder and put somewhere safe until the next visit. This allowed the child to have something a little special in the hospital to brighten the sterile environment, hopefully be germ-free even though it came from home, and it could keep "home" and "hospital" separate.
An outside might see nothing special about Caramon's pillowcase, but to him it meant the world. He loved his pillowcase then and has kept it as a treasured keepsake. When asked about it, he referred to the volunteer as an angel, and truly, she was to our family.
This year, Bernina and American Patchwork & Quilting teamed up to issue a Million Pillowcase Challenge. Their goal? For American sewers to make 1,000,000 pillowcases to donate to local charities. You can see why our family has taken a shine to this. Caramon knew immediately he wanted to use this challenge as part of his Eagle Project.
Are you interested in following his adventure? Helping? Giving encouragement? Well, this is the place for you! Over the next several months we plan to use this blog to update you on his progress. Look for more blog entries detailing his progress, what people can offer, and hopefully we will end this saga with details of his receiving the award.
Here's a picture of Caramon with his very special pillowcase. With love and thanks to his angel from nine years ago, this picture is dedicated to you. (FYI due to comments on this picture elsewhere... Caramon is wearing Red Cross flip flops from when his father recently gave blood. They were too small for dad and Caramon loves the Red Cross for donating when he was sick. If you are able, donating to the Red Cross is a wonderful thing.)
So where is Caramon at in his progress? Pretty much at the start. He has all his ducks in a row verbally. He turned in his paperwork for the official approval. With any luck that will return to us in about a week's time and he can begin really working on his project.
Thank you for visiting and reading. Please, share this with your contacts. We would love to hear your comments. Subscribe to our RSS and connect with Google or Networked Blogs. Those of you already in touch with us, Caramon's tender heart has been touched more then I can describe. Thank you!
--Lady O
Monday, September 20, 2010
Greetings Cyber Space
Caramon and I are setting up this blog so you can follow his efforts toward earning his Eagle Project. Expect more to come! Please subscribe and tell your friends!
--Lady Ozma and Caramon
--Lady Ozma and Caramon
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